Taking back my life

Can anyone else agree with me that 2016 has been just a horrible year? Everyone I know, including myself has had a rough time. However, it seems that things look like they could be turning around finally. Since 2016 barged its way into my life, I have had nothing but horrible luck and the people around me.

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  • I was diagnosed with Ulcerative Colitis
  • I have been on prednisone since January and have gained 50lbs
  • I am still trying to find the right “cocktail” to manage my symptoms
  • My fiancé was in the hospital
  • My father was in the hospital
  • My sister moved away to Maine
  • My close co worker had to have surgery
  • My father’s girlfriend was diagnosed with a health condition and had to have a procedure done
  • I was in the hospital for nine days for pneumonia
  • My mother was in the hospital
  • There was a gas leak in my apartment
  • The family dog has not been doing so well lately (She is a 15 year old yellow lab)

I did not think that list would ever end and I am sure you thought that as well! Alright, so I have had some bad luck. Honestly, I have been trying to cope with it for a while. All of those events happened within a very short amount of time. After I got out of the hospital, I was pretty down. They took away my Humira, until they had conformation that my recent diagnosis, was not caused by it. I wasn’t sure how long the Humira was going to last in my system, before I would start to feel my symptoms return. I was going on a full month without it, I was terrified. I really feel that Humira is working for me, I just have to taper down off the steroids a little slower.

Recently, things started to look up. I got a X-ray done and everything was clear. I had two more doctor appointments and a CT scan. Everything was coming back clear and I finally received the permission to go BACK ON HUMIRA! I had never been so excited to inject a needle in my skin, until that moment. After speaking to the Humira nurse, she wanted to know everything about my recent hospital stay. She stated they must document every time I get sick. She also explained to me once again (like I did not already know), that I can not fight infections. Okay, okay.. I know.. I did not mean to get sick.. If someone is sick around me with a seasonal cold, that could be my pneumonia. Especially with me working in geriatric care, my residents are constantly sick. So I just have to be even more cautious and realize that with a autoimmune disease, my body can not fight.

In my last post I also mentioned starting this new program to assist me in loosing my prednisone weight, and then some. So far, the diet has been challenging. I have lost six pounds in three days. Not bad! I am just happy my dear friend, prednisone, is allowing it!

My father also recently received an offer on his house that had been on the market for a while. It is not sold just yet, but the offer was made and approved now it they just have to finalize a few things and it will be done with.

So, these may not seem like a big deal to most. To me, I thought this year would never turn around. I am excited to say that the possibility is there to have a good rest of the year.

Did you ever feel like nothing was going right? How long did it last? What did you do to stay positive?

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